One of the most stressful things about the role of ‘carer’ is the unknown. You never know what’s round the corner. This of course applies to everyone, not just carers, but when you are looking after someone with a degenerative health condition, the risks of unexpected crisis are much greater. Crises which involve falls, hallucinations, problems with medication or paramedic intervention are always stressful. The stress cannot be avoided. But over the years I have learned to mitigate the stress to a certain extent. This is my learning so far… 1. I don’t let the fear of a crisis stop me from leading an interesting life. If a crisis happens, I just have to deal with it. 2. I try to keep the pace of my life manageable. I build in gaps between activities to give me time to deal with the unexpected. 3. . If I am booked to do something really important, I have an emergency plan in place eg a helper...
The purpose of this blog is to chart my journey as an unpaid carer for my husband. If it gives even one other carer or professional or supporter a clearer understanding of the highs and lows, then it's worth the effort.