When a patient and carer finally meet a consultant or specialist nurse or similar to discuss concerns, one likely question asked will be 'When did this begin?' This question has been posed to me many times over the years, and I never know what to answer. This is because there was no clear starting point for my husband's symptoms. They just crept up on us. I can look back and remember significant moments, but unlike birth and death or divorce or breaking a bone, neurological problems tend to emerge over time. So before I post my husband's current and complex diagnosis, let's journey back in time to a significant moment ten years ago. I call it significant now, but at the time it was just something that happened. The year is 2014. My husband Chris and I are living in a large bungalow in Bexhill with about a quarter of an acre of garden. Chris was diagnosed with type 1 Diabetes as a younger adult, and his eyesight has suffered. I had also noticed his ene...
The purpose of this blog is to chart my journey as an unpaid carer for my husband. If it gives even one other carer or professional or supporter a clearer understanding of the highs and lows, then it's worth the effort.