I had known for many years that Chris suffered major health issues, but even so the diagnosis of Lewy Body Dementia came as a brutal shock. The likely future symptoms were scary, and, combined with Type 1 Diabetes, I knew we were in for a bumpy ride. For the first three weeks after his diagnosis I woke every morning unable to hold back the tears. I had been assaulted by a psychological car crash, and my mind and emotions took a while to adjust. At the end of three weeks, I began to take myself in hand. I decided the only way forward was to take control. I joined a fundraiser for Dementia UK which involved walking every day in February and raising funds for the charity. I bought some new clothes (any excuse!) and promised myself I would look after my appearance. I contacted friends and ensured my social life was still intact. I joined a carer's group and the Bexhill Parkinson's Cafe. I kept up some activities I had previously enjoyed whilst ditching the ones I disliked. I resea...
The purpose of this blog is to chart my journey as an unpaid carer for my husband. If it gives even one other carer or professional or supporter a clearer understanding of the highs and lows, then it's worth the effort.